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	<title>Comments on: Life with colitis is a rollercoaster</title>
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		<title>By: Jemma Lough</title>
		<link>http://bugjemm.net/colitis/life-with-colitis-is-a-rollercoaster/#comment-29</link>
		<dc:creator><![CDATA[Jemma Lough]]></dc:creator>
		<pubDate>Thu, 10 Jun 2010 09:53:12 +0000</pubDate>
		<guid isPermaLink="false">http://bugjemm.wordpress.com/?p=100#comment-29</guid>
		<description><![CDATA[Thanks for the healing vibes Henry - if you could send a few more when you get a chance, I&#039;d be grateful, as things have been bad this week - not sure if it&#039;s the new medicine I haven&#039;t had chance to blog about yet or the next reduction in steroid dose but I&#039;m feeling pretty rubbish and rather emotionally overwhelmed...again. 

I feel for you on the psoriasis front - I have some allergy and dermatitis issues as a complication of my UC and it is so unpleasant when your skin is itching like mad and you just want to climb out of your own skin. I do a fair bit of work on psoriatic disorders and other autoimmune diseases (RA and AS in particular) and I am aware that there is potentially a common underlying thread, so your suggestion on diet makes complete sense. 

But, my diet is already pretty restricted in part through choice and in part due to my gastroenterologist&#039;s recommendation. The choice part is that I&#039;m an ovo-lacto vegetarian and have been for 25 years. When I was first diagnosed with colitis, they did a coeliac test, which was negative so gluten shouldn&#039;t be a problem, although I do find bread and pasta are causing problems at the moment. On my gastro&#039;s recommendation, because I have IBS and IBD, I&#039;ve been on a low-fibre diet for about 7 years. This means I&#039;m not supposed to eat anything brown or wholemeal (bread, rice, pasta, etc), more than two portions of fruit or veg a day, nuts, pulses, crips, cold potatoes, pickles, ... basically anything high in fibre. I believe the thought behind this is that the residual fibrous particles irritate the lining of the bowel, particularly the ulcers and lesions when the bowel is actively inflammed. As you can imagine, it&#039;s a pretty difficult diet for a vegetarian, particularly one who is trying to lose the weight she&#039;s gained as a result of taking steroids, and not the healthiest, with lots of high-fat foods as they&#039;re pretty much all that&#039;s left! I often speak with my gastro about my diet, as I&#039;m concerned that I&#039;m not able to get my five fruit and veg a day and that it&#039;s basically a &#039;fast food&#039;-style diet, but he says I just have to make the best of it. Although cutting out dairy might be a good move, I do wonder what would be left for me to eat! Let me know how you get on though, I&#039;d be interested to see if your psoriasis benefits in the long term. x]]></description>
		<content:encoded><![CDATA[<p>Thanks for the healing vibes Henry &#8211; if you could send a few more when you get a chance, I&#8217;d be grateful, as things have been bad this week &#8211; not sure if it&#8217;s the new medicine I haven&#8217;t had chance to blog about yet or the next reduction in steroid dose but I&#8217;m feeling pretty rubbish and rather emotionally overwhelmed&#8230;again. </p>
<p>I feel for you on the psoriasis front &#8211; I have some allergy and dermatitis issues as a complication of my UC and it is so unpleasant when your skin is itching like mad and you just want to climb out of your own skin. I do a fair bit of work on psoriatic disorders and other autoimmune diseases (RA and AS in particular) and I am aware that there is potentially a common underlying thread, so your suggestion on diet makes complete sense. </p>
<p>But, my diet is already pretty restricted in part through choice and in part due to my gastroenterologist&#8217;s recommendation. The choice part is that I&#8217;m an ovo-lacto vegetarian and have been for 25 years. When I was first diagnosed with colitis, they did a coeliac test, which was negative so gluten shouldn&#8217;t be a problem, although I do find bread and pasta are causing problems at the moment. On my gastro&#8217;s recommendation, because I have IBS and IBD, I&#8217;ve been on a low-fibre diet for about 7 years. This means I&#8217;m not supposed to eat anything brown or wholemeal (bread, rice, pasta, etc), more than two portions of fruit or veg a day, nuts, pulses, crips, cold potatoes, pickles, &#8230; basically anything high in fibre. I believe the thought behind this is that the residual fibrous particles irritate the lining of the bowel, particularly the ulcers and lesions when the bowel is actively inflammed. As you can imagine, it&#8217;s a pretty difficult diet for a vegetarian, particularly one who is trying to lose the weight she&#8217;s gained as a result of taking steroids, and not the healthiest, with lots of high-fat foods as they&#8217;re pretty much all that&#8217;s left! I often speak with my gastro about my diet, as I&#8217;m concerned that I&#8217;m not able to get my five fruit and veg a day and that it&#8217;s basically a &#8216;fast food&#8217;-style diet, but he says I just have to make the best of it. Although cutting out dairy might be a good move, I do wonder what would be left for me to eat! Let me know how you get on though, I&#8217;d be interested to see if your psoriasis benefits in the long term. x</p>
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		<title>By: Jemma Lough</title>
		<link>http://bugjemm.net/colitis/life-with-colitis-is-a-rollercoaster/#comment-28</link>
		<dc:creator><![CDATA[Jemma Lough]]></dc:creator>
		<pubDate>Thu, 10 Jun 2010 09:37:37 +0000</pubDate>
		<guid isPermaLink="false">http://bugjemm.wordpress.com/?p=100#comment-28</guid>
		<description><![CDATA[Just realised how rude I must look not having replied on here - although I think I did on twitter. 

Thanks for your support - it&#039;s very hard at the moment. Four months down the line and, although I have the occasional good day, I am struggling to keep positive. 

I&#039;m also fighting to stay on top of work, having taken on plenty thinking I&#039;d have been in remission by now, so the blog and other hobbies, including family history, have been somewhat little neglected. I promise to do a post on my family history as soon as time allows. 

As for your symptoms, have you been to see a GP? It can&#039;t hurt, and they might be able to help....]]></description>
		<content:encoded><![CDATA[<p>Just realised how rude I must look not having replied on here &#8211; although I think I did on twitter. </p>
<p>Thanks for your support &#8211; it&#8217;s very hard at the moment. Four months down the line and, although I have the occasional good day, I am struggling to keep positive. </p>
<p>I&#8217;m also fighting to stay on top of work, having taken on plenty thinking I&#8217;d have been in remission by now, so the blog and other hobbies, including family history, have been somewhat little neglected. I promise to do a post on my family history as soon as time allows. </p>
<p>As for your symptoms, have you been to see a GP? It can&#8217;t hurt, and they might be able to help&#8230;.</p>
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		<title>By: Cromercrox</title>
		<link>http://bugjemm.net/colitis/life-with-colitis-is-a-rollercoaster/#comment-27</link>
		<dc:creator><![CDATA[Cromercrox]]></dc:creator>
		<pubDate>Thu, 03 Jun 2010 21:54:19 +0000</pubDate>
		<guid isPermaLink="false">http://bugjemm.wordpress.com/?p=100#comment-27</guid>
		<description><![CDATA[Jemma, you poor thing (sends healthful healing vibes from Cromer). At the risk of teaching Granny to suck eggs, Im just wondering about diet, and how what you eat affects your state? I do have a parallel problem to yours. I don&#039;t have colitis, but I have suffered very badly from psoriasis for more than 20 years. I&#039;ve had all sorts of medicines including steroids and even some pretty heavy UV treatment. But then I went to China for a work trip. I&#039;d been there 9 days and suddenly realised that my psoriasis had started to clear up, almost as I watched. It was then I realised that I&#039;d had virtually no diary products since I&#039;d been in China. The Chinese don&#039;t drink milk or eat cheese, and I learn from a Chinese friend that lactose intolerance is more prevalent in China than in the West. So I&#039;ve given up dairy to see if things continue to improve. Soya lattes all round. The connection is that colitis, like psoriasis, is one of those things that&#039;s vaguely connected to stress and the immune system but nobody rfally knows how or why. The only evidence for a connection between psoriasis and dairy products is anecdotal. It&#039;s the 21st century, but you&#039;d never know from how little we know about such things.]]></description>
		<content:encoded><![CDATA[<p>Jemma, you poor thing (sends healthful healing vibes from Cromer). At the risk of teaching Granny to suck eggs, Im just wondering about diet, and how what you eat affects your state? I do have a parallel problem to yours. I don&#8217;t have colitis, but I have suffered very badly from psoriasis for more than 20 years. I&#8217;ve had all sorts of medicines including steroids and even some pretty heavy UV treatment. But then I went to China for a work trip. I&#8217;d been there 9 days and suddenly realised that my psoriasis had started to clear up, almost as I watched. It was then I realised that I&#8217;d had virtually no diary products since I&#8217;d been in China. The Chinese don&#8217;t drink milk or eat cheese, and I learn from a Chinese friend that lactose intolerance is more prevalent in China than in the West. So I&#8217;ve given up dairy to see if things continue to improve. Soya lattes all round. The connection is that colitis, like psoriasis, is one of those things that&#8217;s vaguely connected to stress and the immune system but nobody rfally knows how or why. The only evidence for a connection between psoriasis and dairy products is anecdotal. It&#8217;s the 21st century, but you&#8217;d never know from how little we know about such things.</p>
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		<title>By: imintheshed (ray )</title>
		<link>http://bugjemm.net/colitis/life-with-colitis-is-a-rollercoaster/#comment-26</link>
		<dc:creator><![CDATA[imintheshed (ray )]]></dc:creator>
		<pubDate>Thu, 27 May 2010 07:02:16 +0000</pubDate>
		<guid isPermaLink="false">http://bugjemm.wordpress.com/?p=100#comment-26</guid>
		<description><![CDATA[Hi Jemma 
  jesus when you read the symptoms of colitis or Uc it doesnt tell you the whole story ,t must be a dailt battle to beat this illness , from what you say i dont have colitis just &quot;generic&quot; IBS .I get horrid tasting burbs (stomach bile) until i am so sick, the vomit comes from the pit of my stomach in like a white paste type goo . once i have been sick (usually at night) i start to feel instantly better and within 24 hours i am usually ok .I have had a couple of episodes where i have been doubled up in pain.Oddly since i have cut LAMB out of my diet completely and reduced my food intake generally  i have been ok. since before christmas   .
lets hear some information about your family history as i have been &quot;doing&quot; mine since 1987]]></description>
		<content:encoded><![CDATA[<p>Hi Jemma<br />
  jesus when you read the symptoms of colitis or Uc it doesnt tell you the whole story ,t must be a dailt battle to beat this illness , from what you say i dont have colitis just &#8220;generic&#8221; IBS .I get horrid tasting burbs (stomach bile) until i am so sick, the vomit comes from the pit of my stomach in like a white paste type goo . once i have been sick (usually at night) i start to feel instantly better and within 24 hours i am usually ok .I have had a couple of episodes where i have been doubled up in pain.Oddly since i have cut LAMB out of my diet completely and reduced my food intake generally  i have been ok. since before christmas   .<br />
lets hear some information about your family history as i have been &#8220;doing&#8221; mine since 1987</p>
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		<title>By: Jemma Lough</title>
		<link>http://bugjemm.net/colitis/life-with-colitis-is-a-rollercoaster/#comment-25</link>
		<dc:creator><![CDATA[Jemma Lough]]></dc:creator>
		<pubDate>Sun, 25 Apr 2010 19:50:38 +0000</pubDate>
		<guid isPermaLink="false">http://bugjemm.wordpress.com/?p=100#comment-25</guid>
		<description><![CDATA[I wish you could too sweetie! I have what&#039;s termed &#039;indeterminate colitis&#039;. It means I have features of both Crohn&#039;s disease, which affects the whole gastrointestinal tract, and ulcerative colitis, which affects only the lower GI tract. And mine is also described as pancolitis because it affects the whole of the bowel rather than just a portion of it. The NACC website (www.nacc.org.uk) and IBD club (www.ibdclub.org.uk) have really good information.  ]]></description>
		<content:encoded><![CDATA[<p>I wish you could too sweetie! I have what&#8217;s termed &#8216;indeterminate colitis&#8217;. It means I have features of both Crohn&#8217;s disease, which affects the whole gastrointestinal tract, and ulcerative colitis, which affects only the lower GI tract. And mine is also described as pancolitis because it affects the whole of the bowel rather than just a portion of it. The NACC website (www.nacc.org.uk) and IBD club (www.ibdclub.org.uk) have really good information.  </p>
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		<title>By: ukadventuregurl</title>
		<link>http://bugjemm.net/colitis/life-with-colitis-is-a-rollercoaster/#comment-24</link>
		<dc:creator><![CDATA[ukadventuregurl]]></dc:creator>
		<pubDate>Sun, 25 Apr 2010 18:24:53 +0000</pubDate>
		<guid isPermaLink="false">http://bugjemm.wordpress.com/?p=100#comment-24</guid>
		<description><![CDATA[Hugs Jemma... I wish that there was something I could do for you to make it all go away. What kind of colitis do you have? I&#039;m just doing a bit of reading up on the disease now.]]></description>
		<content:encoded><![CDATA[<p>Hugs Jemma&#8230; I wish that there was something I could do for you to make it all go away. What kind of colitis do you have? I&#8217;m just doing a bit of reading up on the disease now.</p>
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		<title>By: Jemma Lough</title>
		<link>http://bugjemm.net/colitis/life-with-colitis-is-a-rollercoaster/#comment-23</link>
		<dc:creator><![CDATA[Jemma Lough]]></dc:creator>
		<pubDate>Sun, 25 Apr 2010 17:00:30 +0000</pubDate>
		<guid isPermaLink="false">http://bugjemm.wordpress.com/?p=100#comment-23</guid>
		<description><![CDATA[Oh no - I wasn&#039;t supposed to make anyone cry! Just getting things off my chest a bit. I think we all need to do that, it&#039;s just that sometimes it&#039;s hard to open up completely to those closest to you - family and good friends - as you don&#039;t want to bring them down. That might be why I find it easier to be open and express myself on here and on Twitter than I do on FaceBook - because people can choose to ignore me if I get a bit self-indulgent and self-pitying. Thanks for your love and hugs - they are always welcome x]]></description>
		<content:encoded><![CDATA[<p>Oh no &#8211; I wasn&#8217;t supposed to make anyone cry! Just getting things off my chest a bit. I think we all need to do that, it&#8217;s just that sometimes it&#8217;s hard to open up completely to those closest to you &#8211; family and good friends &#8211; as you don&#8217;t want to bring them down. That might be why I find it easier to be open and express myself on here and on Twitter than I do on FaceBook &#8211; because people can choose to ignore me if I get a bit self-indulgent and self-pitying. Thanks for your love and hugs &#8211; they are always welcome x</p>
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		<title>By: Cricketwidow</title>
		<link>http://bugjemm.net/colitis/life-with-colitis-is-a-rollercoaster/#comment-22</link>
		<dc:creator><![CDATA[Cricketwidow]]></dc:creator>
		<pubDate>Sun, 25 Apr 2010 14:23:45 +0000</pubDate>
		<guid isPermaLink="false">http://bugjemm.wordpress.com/?p=100#comment-22</guid>
		<description><![CDATA[Sending lots of love and hugs as always. Hopefully you can get the right balance of meds and be on the up soon.I am crying reading your blog as it makes me realise how much my son was hiding from his Dad and me in the 2yrs he fought colits before surgery was the only option. 
Take care of yourself xx]]></description>
		<content:encoded><![CDATA[<p>Sending lots of love and hugs as always. Hopefully you can get the right balance of meds and be on the up soon.I am crying reading your blog as it makes me realise how much my son was hiding from his Dad and me in the 2yrs he fought colits before surgery was the only option.<br />
Take care of yourself xx</p>
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